As those of you who follow my blog know, my daughter Anna was diagnosed with Childhood Apraxia of Speech a little over four years ago. Her diagnosis features prominently in last third of A Smile for Anna, and I’ve also written about it both here and on the Apraxia-KIDS blog.
I am currently reading an excellent book on the subject, titled Speaking of Apraxia: A Parent’s Guide to Childhood Apraxia of Speech by Leslie Lindsay, published by Woodbine House (2012). Here’s a description of the book from Amazon.com:
At last, a parents’ guide to understanding, treating, and living with childhood apraxia of speech (CAS). Written in an empathic style by a parent who “has been there”, Speaking of Apraxia offers hope and practical advice for parents of toddlers to teens with this neurologically-based motor speech disorder. Characterized by difficulties with planning and producing the complex set of movements necessary for intelligible speech, CAS can be a child’s only diagnosis or can be accompanied by other special needs such as learning disabilities, Down syndrome, or autism. Parents and professionals will appreciate the author’s clear explanations of everything from diagnosing CAS and working with speech-language pathologists (SLPs), to understanding how to distinguish it from other speech disorders, and getting appropriate early intervention and special education support.
Drawing on the latest research, professionals’ insights, her own and other parents’ experience, the author covers these important topics:
I: The Straight Scoop on Speech Basics–CAS definition; An Overview of Speech & Language; Where to Get Help and What to Ask; Your First Appointment with an SLP
II: Now What?!–Getting, Coping with and Understanding the Diagnosis; Health & Genetics; All about Speech Therapy
III: Helping Your Child–Complementary and Alternative Medical and Treatment Approaches (Diet, Music, Movement Therapy and More)
IV: Off to School–Getting Ready; Special Education Ins & Outs; Phonological Awareness; Reading Issues
V: Coping & Hoping–Dealing with Emotions and Family Life; What the Future May Hold; Networking, Support Groups, and Advocacy
Appendices: Information on insurance, summer camps and enrichment programs, speech-language milestones, and a glossary of terms
Speaking of Apraxia is a comprehensive and authoritative resource any family, SLP, occupational therapist, or pediatric practice will be glad to own or recommend.
I’m through Section III, and so far I am impressed. This is a thorough volume covering every aspect of CAS and it includes an extensive list of reverences. I plan to finish the book this week, and post a full review on this blog next week.
I’ve also written a guest post on my own experiences that is up today at the excellent parenting website Science of Mom. I’m hoping that this post, in which I discuss the warning signs of CAS, will help other parents who might be concerned about their own child’s speech development.